Cystic Fibrosis Foundation3d
How I Fought for Answers About My Health
I’ve always believed that I had a story to share — this is the time to do so. I was born in 1984 to a set of parents with different lifestyles, not knowing how my life would turn out. I’d love to tell ...
Cystic Fibrosis Foundation3d
Multiple Principal Investigator Award
Research projects may be designed to test new hypotheses and/or new methods (pilot and feasibility) or to advance established results with the potential to address diagnosis, treatment, management of ...
Cystic Fibrosis Foundation23d
FDA Approves New, Once-a-Day CFTR Modulator for People With CF
A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...
Cystic Fibrosis Foundation24d
The Unexpected Aftermath of CF-Related Liver Disease
I was diagnosed with cystic fibrosis-related liver cirrhosis in 2004 at the age of 9. Growing up, my disease wasn’t something to be pitied or seen as a weakness. It was a strength. I had the mentality ...
Cystic Fibrosis Foundation23d
FDA Approves Trikafta for 94 Additional Rare CFTR Mutations
The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...
Cystic Fibrosis Foundation26d
Why Taking Care of Myself Is the Best Thing I Can Do for My Daughter
Caring for a child with CF is challenging in more than one way. My daughter’s struggles often bring up my own mental health obstacles, making it difficult to be fully present for her when she needs me ...
Cystic Fibrosis Foundation23d
Finding Strength in the CF Community
When my daughter, Elara, was diagnosed with cystic fibrosis at just 1 month old, my world shifted in an instant. As a mother to a 5-year-old, I was no stranger to the ups and downs of parenting, but ...
Cystic Fibrosis Foundation9y
Our Venture Philanthropy Model
In 1989, a team of scientists supported by the Foundation discovered the cystic fibrosis gene and opened the door to our understanding of the disease at its most basic level. People with CF and their ...
Cystic Fibrosis Foundation3y
Research and Clinical Trials
The CF Foundation supports a wide range of innovative research programs to discover and develop new and effective CF therapies. Drug Development Pipeline and Clinical Trials Research and trials to ...
Cystic Fibrosis Foundation3y
Vascular Access Devices: PICCs and Ports
Who Needs Vascular Access Devices? Vascular access devices may help people with cystic fibrosis who need intravenous (IV) antibiotic treatments for more than just a few days, such as during an ...
Cystic Fibrosis Foundation1y
New Jersey Chapter
The New Jersey Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.