I’ve always believed that I had a story to share — this is the time to do so. I was born in 1984 to a set of parents with different lifestyles, not knowing how my life would turn out. I’d love to tell ...

Research projects may be designed to test new hypotheses and/or new methods (pilot and feasibility) or to advance established results with the potential to address diagnosis, treatment, management of ...

A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...

The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...

I was diagnosed with cystic fibrosis-related liver cirrhosis in 2004 at the age of 9. Growing up, my disease wasn’t something to be pitied or seen as a weakness. It was a strength. I had the mentality ...

Caring for a child with CF is challenging in more than one way. My daughter’s struggles often bring up my own mental health obstacles, making it difficult to be fully present for her when she needs me ...

When my daughter, Elara, was diagnosed with cystic fibrosis at just 1 month old, my world shifted in an instant. As a mother to a 5-year-old, I was no stranger to the ups and downs of parenting, but ...

The Paul di Sant’Agnese Legacy Society is a group of Cystic Fibrosis Foundation supporters who have made a lasting commitment by making a legacy gift. It is a special way for us to honor your gift, ...

Your legacy of adding tomorrows for everyone with CF. Thank you for your incredible support. By including a gift to the Cystic Fibrosis Foundation in your will, you are making your mark on the future ...

Some of our donors have established a donor-advised charitable fund (Fidelity Charitable ®, Vanguard Charitable ®, Schwab Charitable ® or other) and have a strong desire to support the Cystic Fibrosis ...

Making a legacy gift in your will or trust is one of the easiest and most popular ways to make a lasting impact for the Cystic Fibrosis Foundation. Once you have provided for your loved ones, we hope ...

Please fill out the form below to let us know your availability. A member of the team will respond shortly to schedule a meeting. I am a prospective donor with questions about your programs. I am a ...